Browse Items · Pediatric Palliative Care Library

Sublingual atropine drops for the treatment of pediatric sialorrhea

Excess oral secretions or sialorrhea is a common problem affecting children and adults with neurological disorders, as well as those approaching the end of life because of a variety of underlying illnesses. Systemic anticholinergic medications are…

Tags: 2010, Backlog, Journal Article, Journal of Pain and Symptom Management, Rapoport A

Siblings’ voices: A prospective investigation of experiences with a dying child

Sibling relationships reflect a unique childhood bond, thus the impact on a sibling when a child is seriously ill or dying is profound. We conducted a prospective, longitudinal, qualitative study over 2 years using interpretive descriptive…

Siblings' Voices: A Prospective Investigation Of Experiences With A Dying Child

Sibling relationships reflect a unique childhood bond, thus the impact on a sibling when a child is seriously ill or dying is profound. We conducted a prospective, longitudinal qualitative study over two years using interpretive descriptive…

Tags: 2017, Barrera M, Beaune L, Cadell S, Children, Death studies, end-of-life, July 2017 List, Neville A, Palliative Care, Pediatrics, Rapoport A, Rugg M, Russell CE, Sibling, Steele R, Widger K

Siblings Of Children With A Complex Chronic Health Condition: Maternal Posttraumatic Growth As A Predictor Of Changes In Child Behavior Problems.

OBJECTIVE:
The present study examined the role of maternal posttraumatic growth in changes in behavioral problems among the siblings of children with complex chronic health conditions. METHODS: Data were collected from a sample of 70 siblings…

Tags: 2016, Andrews GS, Cadell S, Charting the territory, Child Behavior Problems, Complex Chronic Conditions, DeLongis A, Families, Journal of Pediatric Psychology, June 2016 List, Pediatric Palliative Care, Posttraumatic Growth, Siblings., Siden H, Steele R, Stephenson E

Siblings of children with a complex chronic health condition: Maternal posttraumatic growth as a predictor of changes in child behavior problems

Objective: The present study examined the role of maternal posttraumatic growth in changes in behavioral problems among the siblings of children with complex chronic health conditions. Methods: Data were collected from a sample of 70 siblings from 58…

Siblings of Children With a Complex Chronic Health Condition: Maternal Posttraumatic Growth as a Predictor of Changes in Child Behavior Problems

OBJECTIVE: The present study examined the role of maternal posttraumatic growth in changes in behavioral problems among the siblings of children with complex chronic health conditions. METHODS: Data were collected from a sample of 70 siblings from 58…

Tags: 2016, Andrews GS, Backlog, Cadell S, DeLongis A, Journal Article, Journal of Pediatric Psychology, Siden H, Steele R, Stephenson E

Sibling bereavement: research-based guidelines for nurses. [Review] [27 refs]

Despite the marked improvement in the treatment of childhood cancer in recent decades, there are children who die, leaving behind a legacy of grief for all who knew them, including their siblings. Nurses can play a significant role in facilitating…

Tags: 1993, Backlog, Davies B, IM, Journal Article, N, Seminars In Oncology Nursing, sibling bereavement

Sibling bereavement and continuing bonds.

Historically, from a Freudian and medical model perspective, emotional disengagement from the deceased was seen as essential to the successful adaptation of bereavement. A major shift in the bereavement literature has occurred and it is now generally…

Shifting Focus In Pediatric Advance Care Planning: From Advance Directives To Family Engagement

The foundational principle of palliative care is to provide comfort, ameliorate symptoms, and offer emotional support when death is inevitable. Advance care planning (ACP) elicits patients' goals for the future. One important result of an ACP…

Tags: 2016, Chavoshi N, Journal of Pain and Symptom Management, July 2016 List, Siden H

Shared life space and sibling bereavement responses.

1988-12

Tags: 1988, Backlog, Bereavement, Cancer Nursing, Davies B, IM, Journal Article, N, sibling bereavement

Self-reported experiences of siblings of children with life-threatening conditions: A scoping review

Sibling relationships are one of the most long-lasting and influential relationships in a human?s life. Living with a child who has a life-threatening condition changes healthy siblings? experience. This scoping review summarized and mapped research…

Tags: 2022, 2032 SE2 - Parent Perspectives, Child, Critical Illness, Family, Family Health, Humans, Journal Of Child Health Care, scoping review Adaptation Psychological, Self Report, Sibling, Siblings psychology, Stremler R, Tay J, Widger K

Self-reported experiences of siblings of children with life-threatening conditions: A scoping review

Sibling relationships are one of the most long-lasting and influential relationships in a human's life. Living with a child who has a life-threatening condition changes healthy siblings' experience. This scoping review summarized and mapped research…

Tags: 2021, August 2021 List, Children, Critical Illness, Journal Of Child Health Care, Scoping review, Sibling(s), Stremler R, Tay J, Widger K

Resource Utilization Among Individuals Dying Of Pediatric Life-threatening Diseases

BACKGROUND AND OBJECTIVES: Very little information exists on the number of resources utilized by individuals living with and dying of pediatric life-threatening diseases (LTDs). This study quantifies end of life (EOL) resource utilization among the…

Research priorities in pediatric palliative care: a delphi study

Pediatric palliative care is increasingly recognized to be a specialized type of care requiring specific skills and knowledge, yet, as found in several countries, there is little available research evidence on which to base care. Objectives: The goal…

Research considerations in pediatric palliative care

Tags: 2011, Cadell S, Davies B, Siden H, Steele R, Straatman L, Widger K

Reimagining Perinatal Palliative Care: A Broader Role for Support in the Face of Uncertainty

Perinatal medicine is confronted by a growing number of complex fetal conditions that can be diagnosed prenatally. The evolution of potentially life-prolonging interventions for the baby before and after birth contributes to prognostic uncertainty.…

Rapid genome-wide sequencing in a neonatal intensive care unit: A retrospective qualitative exploration of parental experiences

Abstract Genome-wide sequencing (GWS) is increasingly being used in neonatal intensive care units. While studies have explored its clinical utility, little is known about parental experiences with this testing post-return of results. We conducted a…

Tags: 2020, 2022 Special Edition 1 - Parent Perspectives, Aldridge CE, Decisional regret, Elliott AM, Genetic Counseling, genome-wide sequencing, Journal of Genetic Counseling, lived experience, Neonates, Osiovich H, Siden H

Rapid genome-wide sequencing in a neonatal intensive care unit: A retrospective qualitative exploration of parental experiences

Abstract Genome-wide sequencing (GWS) is increasingly being used in neonatal intensive care units. While studies have explored its clinical utility, little is known about parental experiences with this testing post-return of results. We conducted a…

Tags: 2020, Aldridge CE, December 2020 List, Decisional regret, Elliott AM, Genetic Counseling, genome-wide sequencing, Journal of Genetic Counseling, lived experience, Neonates, Osiovich H, Siden H

Psychological Correlates of Depression in Children with Recurrent Abdominal Pain

Objective To examine the associations between coping style, social support, self-efficacy, locus of control, maternal adjustment, and depressive symptoms in children with recurrent abdominal pain (RAP) of childhood. Methods Fifty children with RAP…

Tags: 2006, Backlog, Dewey D, Journal Article, Journal of Pediatric Psychology, Kaminsky L, PedPal Lit, Robertson M

Protocol: Evaluating The Impact Of A Nation-wide Train-the-trainer Educational Initiative To Enhance The Quality Of Palliative Care For Children With Cancer

Background
There are identified gaps in the care provided to children with cancer based on the self-identified lack of education for health care professionals in pediatric palliative care and in the perceptions of bereaved parents who describe…

Promoting An Ethic Of Engagement In Pediatric Palliative Care Research

BACKGROUND: This paper defends the ethical and empirical significance of direct engagement with terminally ill children and adolescents in PPC research on health-related quality of life. Clinical trials and other forms of health research have…

Tags: 2015, Bartlett G, BMC Palliative Care, Crimi L, Ells C, Humans, Jabado N, July 2017 List, Longo C, Macdonald ME, Palliative Care/methods, Patient Participation/methods, Pediatric Nursing/methods, Quality Of Life, Rahimzadeh V, Research

Power, pathalogical worldviews and the strengths perspective in social work

2009

Tags: 2009, Backlog, Cadell S, Families In Society, Grant J, Journal Article

Poverty and pediatric palliative care: what can we do?

It has been recognized that families of children with life-limiting health conditions struggle with significant financial demands, yet may not have awareness of resources available to them. Additionally, health care providers may not be aware of the…

Tags: 2014, Backlog, Beaune L, Chapman LA, Child Poverty Tool and Resource Guide, content validity, Ford-Jones L, Journal Article, Journal of Social Work in End-of-Life & Palliative Care, Leavens A, life limiting illness, Morinis J, Muskat B, Pediatric Palliative Care, Qualitative Methods, Rapoport A, social determinants of health, Zlotnik SR

Posttraumatic growth in parents caring for a child with a life-limiting illness: A structural equation model.

When parents first meet their child, they take on the entwined joys and burdens of caring for another person. Providing care for their child becomes the basic expectation, during health and illness, through the developmental milestones, into…

Posttraumatic growth and HIV bereavement: Where does it start and when does it end?

There is growing interest in researching posttraumatic growth and understanding how to enhance positive outcomes in trauma survivors. This study undertook a systematic exploration of the posttraumatic growth in bereaved caregivers of people with…

Tags: 2006, Backlog, Bereavement, Cadell S, Grief, HIV bereavement, iatrogenic effects of research interventions, Journal Article, Longitudinal Studies, Mixed methods, Post-traumatic, Posttraumatic Growth, Stress Disorders, Sullivan R, Trauma and recovery, Traumatology

Physician variability in treating pain and irritability of unknown origin in children with severe neurological impairment

BACKGROUND: Pain and irritability of unknown origin (PIUO) is a challenging problem for nonverbal children with severe neurological impairments. PIUO is not associated with an identifiable source of nociceptive-inflammatory or neuropathic pain.…

Tags: 2013, Article #6, Backlog, Carleton BC, Journal Article, Oberlander T, Pain Research & Management : The Journal Of The Canadian Pain Society = Journal De La Societe Canadienne Pour Le Traitement De La Douleur, Siden H

Physician Variability In Treating Pain And Irritability Of Unknown Origin In Children With Severe Neurological Impairment

BACKGROUND: Pain and irritability of unknown origin (PIUO) is a challenging problem for nonverbal children with severe neurological impairments. PIUO is not associated with an identifiable source of nociceptive-inflammatory or neuropathic pain.…

Tags: 2013, Adolescent, Analgesics/ Therapeutic Use, Carleton BC, Child, Developmental Disabilities/ Complications, Female, Humans, Male, Oberlander TF, Pain and Irritability Project, Pain Management/ Methods, Pain Research & Management, Pain/complications/ Drug Therapy, Physician Variability In Treating Pain And Irritability Of Unknown Origin In Children With Severe Neurological Impairment, Pilot Projects, Practice Patterns Physicians'/ Statistics & Numerical Data, Siden H

Physician stress in the context of medical aid in dying

2016-09

Tags: 2016, Backlog, Journal Article, Siden H, University of British Columbia Medical Journal

Perspectives of pediatric oncologists and palliative care physicians on the therapeutic use of cannabis in children with cancer

Background Children with cancer are increasingly using cannabis therapeutically. Aim The purpose of this study was to determine the perspectives and practices of pediatric oncologists and palliative care physicians regarding the use of cannabis for…

Perceptions of discrimination among Mexican American families of seriously ill children

This paper describes Mexican American family members' descriptions of perceived discrimination by pediatric health care providers (HCPs) and the families' reactions to the HCPs' discriminatory conduct. A retrospective, grounded theory design guided…

Perceptions of control and long-term recovery from rape

The relationship between perceptions of control and symptoms of both long-term depression and post-traumatic stress was examined. Enduring beliefs of personal competence and control were found to be associated with lower rates of depression and…

Peer relationships of bereaved siblings and comparison classmates after a child's death from cancer

OBJECTIVES: To compare peer relationships among bereaved siblings and matched classmates, and to examine gender, grade level, and time since death as moderators. METHODS: Families were recruited from cancer registries at four hospitals 3-12 months…

Pediatric Project ECHO®: A Virtual Community of Practice to Improve Palliative Care Knowledge and Self-Efficacy among Interprofessional Health Care Providers

Background: Health care providers (HCPs) require ongoing training and mentorship to fully appreciate the palliative care needs of children. Project ECHO® (Extension for Community Healthcare Outcomes) is a model for delivering…

Tags: 2020, continuing professional development, distance education, February 2021 List, Journal of Palliative Medicine, Lalloo C, Osei-Twum J, Pediatric Palliative Care, Project ECHO, Rapoport A, Stinson J, Vadeboncoeur C, Veldhuijzen van Zanten S, Weingarten K, Widger K

Pediatric patients receiving palliative care in Canada: results of a multicenter review

OBJECTIVES: To describe the patients who received care from the 8 dedicated pediatric palliative care programs in Canada in 2002 and to estimate the number of children who may have benefited but did not receive services from these programs. DESIGN:…

Pediatric palliative care program versus usual care and healthcare resources utilization in British Columbia: a matched-pairs cohort study

BACKGROUND: Evidence on the impact of pediatric palliative care programs (PPCP) on resource utilization is scarce and requires broader measures to include utilization beyond the hospital setting. OBJECTIVE: This research aims to provide a Canadian…

Tags: 2015, Backlog, Chavoshi N, Conte T, Erdelyi S, Journal Article, Journal of Palliative Medicine, Mitton C, Siden H

Browse Items (241 total)