Browse Items · Pediatric Palliative Care Library

Parental perceptions of forgoing artificial nutrition and hydration during end-of-life care

BACKGROUND AND OBJECTIVE: Forgoing artificial nutrition and hydration (FANH) in children at the end of life (EOL) is a medically, legally, and ethically acceptable practice under speci fi c circumstances. However, most of the evidence on FANH…

Siblings of Children With a Complex Chronic Health Condition: Maternal Posttraumatic Growth as a Predictor of Changes in Child Behavior Problems

OBJECTIVE: The present study examined the role of maternal posttraumatic growth in changes in behavioral problems among the siblings of children with complex chronic health conditions. METHODS: Data were collected from a sample of 70 siblings from 58…

Tags: 2016, Andrews GS, Backlog, Cadell S, DeLongis A, Journal Article, Journal of Pediatric Psychology, Siden H, Steele R, Stephenson E

P259 A Scoping Review to Examine Symptoms in Children with Rare, Progressive, Life-Threatening Disorders

2016-12

Tags: 2016, Backlog, Beck C, Brown H, Dewan T, Grégoire MC, Harvey B, Hermansen AM, Journal Article, Journal of Pain and Symptom Management, Pawliuk C, Q3 Scoping Review, Siden H, Steele R, Widger K

Physician stress in the context of medical aid in dying

2016-09

Tags: 2016, Backlog, Journal Article, Siden H, University of British Columbia Medical Journal

Introducing a Lexicon of Terms for Pediatric Palliative Care

2015

Tags: 2015, Backlog, Davies D, Journal Article, Macdonald ME, Paediatrics & Child Health, PEDI Study, Siden H, Spicer S, Vadeboncoeur C

Initial development and psychometric testing of an instrument to measure the quality of children's end-of-life care

BACKGROUND: The field of pediatric palliative care is hindered by the lack of a well-defined, reliable, and valid method for measuring the quality of end-of-life care. METHODS: The study purpose was to develop and test an instrument to measure…

Tags: 2015, Backlog, BMC Palliative Care, Journal Article, Steele R, Streiner DL, Tourangeau AE, Widger K

Charting the Territory: Children and families living with progressive life-threatening conditions

OBJECTIVES: To increase awareness of the topic of paediatric palliative care among practicing physicians in Canada by exploring the impact of a child’s neurological or rare genetic life-threatening condition on the affected child and his/her parents.…

Tags: 2015, Backlog, Charting the territory, Journal Article, Paediatrics & Child Health, Siden H, Steele R

Pediatric palliative care program versus usual care and healthcare resources utilization in British Columbia: a matched-pairs cohort study

BACKGROUND: Evidence on the impact of pediatric palliative care programs (PPCP) on resource utilization is scarce and requires broader measures to include utilization beyond the hospital setting. OBJECTIVE: This research aims to provide a Canadian…

Tags: 2015, Backlog, Chavoshi N, Conte T, Erdelyi S, Journal Article, Journal of Palliative Medicine, Mitton C, Siden H

Pediatric patients receiving palliative care in Canada: results of a multicenter review

OBJECTIVES: To describe the patients who received care from the 8 dedicated pediatric palliative care programs in Canada in 2002 and to estimate the number of children who may have benefited but did not receive services from these programs. DESIGN:…

Addressing ethical concerns regarding pediatric palliative care research

2009

Tags: 2009, Archives Of Pediatrics & Adolescent Medicine, Backlog, Decision Making, Ethics, Humans, Journal Article, Palliative Care/ethics, Pediatrics/ethics, Rapoport A, Research, United States

Understanding Canadian Punjabi-speaking South Asian women's experience of breast cancer: A qualitative study

2008

Tags: 2008, Backlog, Barroetavena MC, Cadell S, Doll R, Gurm BK, International Journal Of Nursing Studies, Journal Article, Mackenzie G, Stephen J

Can you give me respect? Experiences of the urban poor on a dedicated AIDS nursing home unit

2008

Tags: 2008, Backlog, Davies B, Gudmundsdottir M, Hughes A, Journal Article, Journal Of The Association Of Nurses In Aids Care

Haloperidol as a palliative anti-emetic in a toddler: an evidence base challenge

2008

Tags: 2008, Antiemetics, Backlog, Evidence-based Medicine, Fatal Outcome, Haloperidol, Humans, Infant, Journal Article, Journal of Pain and Symptom Management, Male, Nausea, Palliative Care, Precursor Cell Lymphoblastic Leukemia-Lymphoma, Siden H

Sublingual atropine drops for the treatment of pediatric sialorrhea

Excess oral secretions or sialorrhea is a common problem affecting children and adults with neurological disorders, as well as those approaching the end of life because of a variety of underlying illnesses. Systemic anticholinergic medications are…

Tags: 2010, Backlog, Journal Article, Journal of Pain and Symptom Management, Rapoport A

Paediatric palliative care: Challenges and emerging ideas.

2007

Tags: 2007, Backlog, Journal Article, Liben S, Papadatou D, The Lancet, Wolfe J

Paediatric palliative care: Challenges and emerging ideas.

Paediatric palliative care is an emerging subspecialty that focuses on achieving the best possible quality of life for children with life-threatening conditions and their families. To achieve this goal, the individuals working in this field need to:…

Tags: 2007, Backlog, Journal Article, Lancet, Liben S, Longitudinal Studies, Papadatou D, Wolfe J

The integration of religious traditions in Japanese children's view of death and afterlife

2007

Tags: 2007, Backlog, Davies B, Death studies, Journal Article, Sagara-Rosemeyer M

The (re)construction of self after the death of a partner to HIV/AIDS

2007

Tags: 2007, Backlog, Cadell S, Death studies, Journal Article, Marshall S

Away from home: Experiences of Mexican-American Families in Pediatric Palliative Care

2010

Tags: 2010, Backlog, Contro N, Davies B, Journal Article, Journal of Social Work in End-of-Life & Palliative Care, Larson JM, Sourkes B

The sun always comes out after it rains: understanding posttraumatic growth in HIV carers

2007

Tags: 2007, Backlog, Cadell S, Health & Social Work, Journal Article

A place to die: The case for paediatric inpatient hospices

2008

Tags: 2008, Backlog, Journal Article, Paediatrics & Child Health, PPC Book Chapter 2011 (Kim Widger), Rapoport A

Exploring the Supportive Care Model as a framework for pediatric palliative care

2009

Tags: 2009, Backlog, Davies B, Journal Article, Journal Of Hospice & Palliative Nursing, Oberle K, Steele R, Widger K

A paediatric palliative care programme in development: trends in referral and location of death

Purpose To describe the formation of a paediatric palliative care programme providing care in hospital, at home or in hospice, ensuring continuity of care where the child and family desire. Study design Descriptive analysis was performed on referral…

Tags: 2010, Archives of Disease in Childhood, Backlog, Coulombe L, Johnston DL, Journal Article, Location Of Death, Rattray M, Splinter WM, Vadeboncoeur C

A Report On Location of Death in Paediatric Palliative Care Between Home, Hospice and Hospital

This retrospective study analysed data for 703 children who died from 2000 to 2006 to examine where children with a broad range of progressive, life-limiting illnesses actually die when families are able to access hospital, paediatric hospice…

Considerations for ethics in multisite research in paediatric palliative care

2009

Tags: 2009, Backlog, Cadell S, Davies B, Ho G, Jacques L, Journal Article, Multi-site Ethics, NET CV, Palliative Medicine, PPC Book Chapter 2011 (Kim Widger), Steele R, Wilson K

Creating social work competencies for practice in hospice palliative care

Social workers play an important role in the delivery of Hospice Palliative Care in many diverse settings. The profession brings a unique perspective to end-of-life care that reflects and supports the holistic philosophy of Hospice Palliative Care.…

Gender imbalance in pediatric palliative care research samples

We assessed the sampling performance of research on parental perspectives in pediatric palliative care and examined if and how gender imbalance was treated. We undertook a systematic review of parental perspectives research in pediatric palliative…

Tags: 2010, Affleck W, Backlog, Cadell S, Chilibeck G, Journal Article, Macdonald ME, NET CV, Palliative Medicine

Chemotherapy-related fatigue in childhood cancer: correlates, consequences, and coping strategies

The aim of this research is to examine the experience and impact of chemotherapy-related fatigue in recently diagnosed pediatric oncology patients. A repeated-measures, within-subjects, mixed (quantitative plus qualitative) design was used to…

Tags: 2008, Adaptation, Antineoplastic Agents/adverse effects, Backlog, Child, Davies B, Fatigue/chemically induced, Friedman D, Gudmundsdottir M, Humans, Journal Article, Journal Of Pediatric Oncology Nursing, McCarthy P, Neoplasms/drug therapy/psychology, Parents, Psychological, Questionnaires, Whitsett SF

Conducting a qualitative culture study of pediatric palliative care

While conducting a grounded theory study of Chinese American and Mexican American families' experiences in pediatric palliative care, we encountered a number of unanticipated challenges regarding project development, Institutional Review Boards,…

Tags: 2009, Ablin AR, Backlog, Chesla CA, Cohen H, Contro N, Davies B, Journal Article, Larson J, Qualitative Health Research, Reyes-Hailey C, Sourkes B

Using participant observation in pediatric health care settings: ethical challenges and solutions

2008

Tags: 2008, Backlog, Bluebond-Langner M, Carnevale FA, Journal Article, Journal Of Child Health Care, Macdonald ME, McKeever P

Designing and implementing a longitudinal study of children with neurological, genetic or metabolic conditions: charting the territory

BACKGROUND: Children with progressive metabolic, neurological, or chromosomal conditions and their families anticipate an unknown lifespan, endure unstable and often painful symptoms, and cope with erratic emotional and spiritual crises as the…

The boy who refused an IV: a case report of subcutaneous clodronate for bone pain in a child with Ewing Sarcoma

ABSTRACT: BACKGROUND: Bone pain in malignancy can be challenging to treat. Bisphosphonates have been found to be useful in adults with bone pain, but there are no reports of their use in children for this indication. In pediatric palliative medicine…

Tags: 2007, Backlog, Journal Article, Journal Of Medical Case Reports, Longitudinal Studies, Siden H

Everyday struggling to survive: Experiences of the urban poor living with advanced cancer.

2007

Tags: 2007, Backlog, Davies B, Gudmundsdottir M, Hughes A, Journal Article, Oncology Nursing Forum, ONS Excellence in Cancer Nursing Research Award

Families' transition to a Canadian paediatric hospice. Part one: planning a pilot study

This article describes the rationale for planning and conducting a qualitative pilot study about families' transition to a Canadian paediatric hospice. Discussion includes: background information and a literature review pertinent to the study; debate…

Families' transition to a Canadian paediatric hospice. Part two: results of a pilot study

The results from a pilot study are reported in this article, part two of a two-part paper. The experiences of parents (six mothers and two fathers) are described as their families transitioned to the Canuck Place Children's Hospice (CPHC) in Canada.…

Timing is everything: The experience of parental cancer for young adult daughters-a pilot study

2008

Tags: 2008, Backlog, Cadell S, Journal Article, Journal Of Psychological Oncology, Puterman J

Barriers to palliative care for children: Perceptions of pediatric health care providers

OBJECTIVE. The goal was to explore barriers to palliative care experienced by pediatric health care providers caring for seriously ill children. METHODS. This study explored pediatric provider perceptions of end-of-life care in an academic children's…

Tags: 2008, Amidi-Nouri A, Backlog, Cooper BA, Davies B, Hughes A, Journal Article, Kramer RF, Longitudinal Studies, Partridge JC, Pediatrics, Philp JC, Sehring SA

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