Browse Items · Pediatric Palliative Care Library

Death and Grief On-Line: Virtual Memorialization and Changing Concepts of Childhood Death and Parental Bereavement on the Internet

‘Virtual memorials’ intended to memorialize the lives of children imply significant shifts in the conceptualization of death, particularly for grieving parents. Created by parents in memory of their deceased children, on-line memorials constructed…

Tags: 2012, Cadell S, Health Sociology Review, Macdonald ME, Mitchell LM, Stephenson PH

Excluding parental grief: A critical discourse analysis of bereavement accommodation in Canadian labour standards

BACKGROUND: Grief following child loss is profoundly destabilizing with serious long-term repercussions for bereaved parents. Employed parents may need time away from work to deal with this loss.OBJECTIVE: The purpose of this study was to reflect…

Tags: 2014, Backlog, Cadell S, Journal Article, Kennedy K, Macdonald ME, Mitchell LM, Moll S, Pineda C, Stephenson PH, Work (reading, Mass.)

Gender imbalance in pediatric palliative care research samples

We assessed the sampling performance of research on parental perspectives in pediatric palliative care and examined if and how gender imbalance was treated. We undertook a systematic review of parental perspectives research in pediatric palliative…

Tags: 2010, Affleck W, Backlog, Cadell S, Chilibeck G, Journal Article, Macdonald ME, NET CV, Palliative Medicine

Introducing a lexicon of terms for paediatric palliative care.

Tags: 2015, Davies D, Macdonald ME, Paediatrics & Child Health, Siden H, Spicer S, Vadeboncoeur C

Introducing a Lexicon of Terms for Pediatric Palliative Care

2015

Tags: 2015, Backlog, Davies D, Journal Article, Macdonald ME, Paediatrics & Child Health, PEDI Study, Siden H, Spicer S, Vadeboncoeur C

Lexicon of Terms in Pediatric Palliative Care

PedPalASCNET-Lexicon-31-July2014-Final.pdf

This Lexicon has been developed through a collaborative process by the PedPalASCNET network members as a tool for clinicians and researchers to standardize the usage of common terms in the field of pediatric palliative care. The Lexicon reflects the…

Tags: 2014, Davies D, Macdonald ME, Siden H, Spicer S, Vadeboncoeur C

Parental perspectives on hospital staff members' acts of kindness and commemoration after a child's death

OBJECTIVES: Acts of kindness and commemoration by staff members often follow the death of a patient. Acts include attending funerals, sending sympathy cards, sending cards on birthdays/anniversaries, telephoning/visiting family homes, and attending…

Promoting An Ethic Of Engagement In Pediatric Palliative Care Research

BACKGROUND: This paper defends the ethical and empirical significance of direct engagement with terminally ill children and adolescents in PPC research on health-related quality of life. Clinical trials and other forms of health research have…

Tags: 2015, Bartlett G, BMC Palliative Care, Crimi L, Ells C, Humans, Jabado N, July 2017 List, Longo C, Macdonald ME, Palliative Care/methods, Patient Participation/methods, Pediatric Nursing/methods, Quality Of Life, Rahimzadeh V, Research

Trends in Pediatric Palliative Care 2017; Issue #11

This commentary brings together perspectives from an interdisciplinary group of researchers –five trainees, a research manager, and a senior scientist –who share an interest in the emergent field of childhood ethics and pediatric palliative…

Tags: Macdonald ME, November 2017 List

Understanding How Bereaved Parents Cope With Their Grief To Inform The Services Provided To Them

Our objective was to develop a rich description of how parents experience their grief in the first year after the death of their child, and how various bereavement follow-up and support services helped them during this time, with the aim of informing…

Tags: 2017, Achille M, Cohen SR, Humbert N, June 2017 List, Liben S, Macdonald ME, Petti A, Proulx MC, Qualitative Health Research, Stevenson M

Using participant observation in pediatric health care settings: ethical challenges and solutions

2008

Tags: 2008, Backlog, Bluebond-Langner M, Carnevale FA, Journal Article, Journal Of Child Health Care, Macdonald ME, McKeever P

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