1
40
9
-
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Title
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PedPalASCNet Member Publications
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A collection of relevant articles published by one or more of PedPalASCNet's members
Text
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Citation List Month
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<a href="http://doi.org/10.1080/13691058.2010.525665" target="_blank" rel="noreferrer">http://doi.org/10.1080/13691058.2010.525665</a>
Dublin Core
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Title
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Managing Stigma in Adolescent HIV: Silence, Secrets and Sanctioned Spaces
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Culture, Health And Sexuality
Date
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2011
Creator
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Fielden S; Chapman G; Cadell S
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<a href="http://doi.org/10.1080/13691058.2010.525665" target="_blank" rel="noreferrer">10.1080/13691058.2010.525665</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
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Journal Article
2011
Backlog
Cadell S
Chapman G
Culture, Health And Sexuality
Fielden S
Journal Article
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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PedPalASCNet Member Publications
Subject
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A collection of relevant articles published by one or more of PedPalASCNet's members
Text
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Backlog
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<a href="http://doi.org/10.1186/1472-6963-11-343" target="_blank" rel="noreferrer">http://doi.org/10.1186/1472-6963-11-343</a>
Dublin Core
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Using network analysis to map the formal clinical reporting process in pediatric palliative care: a pilot study
Publisher
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Bmc Health Services Research
Date
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2011
Subject
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NET CV
Creator
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Siden H; Urbanoski K
Description
An account of the resource
ABSTRACT: BACKGROUND: Continuity of care is a key component of care in complex and chronic conditions. Despite its importance, it is often absent in chronic-disease management. One challenge has been identifying tools to measure care continuity. In one context important to families, namely pediatric palliative care, we undertook a project to identify continuity and to pilot the use of network analysis as a tool. METHODS: Network analysis studies patterns of relationships or interactions between members, providing qualitative and quantitative description of network structure. RESULTS: In this report we applied network analysis to paper records of clinical consultations and reports for 6 patients with complex conditions. A high degree of discontinuity was identified, and care was fragmented amongst specialist and generalist providers. Information was shared selectively and often moved in only one direction. CONCLUSIONS: Families have anecdotally reported frustration with poor continuity of care. Network analysis can be a useful tool in describing the discontinuity of care experienced by families dealing with complex and chronic conditions. This tool could be expanded to other systems such as electronic health records and many other health care situations.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1186/1472-6963-11-343" target="_blank" rel="noreferrer">10.1186/1472-6963-11-343</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
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Journal Article
2011
Backlog
BMC Health Services Research
Journal Article
NET CV
Siden H
Urbanoski K
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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PedPalASCNet Member Publications
Subject
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A collection of relevant articles published by one or more of PedPalASCNet's members
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1542/peds.2010-3225" target="_blank" rel="noreferrer">http://doi.org/10.1542/peds.2010-3225</a>
Dublin Core
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Title
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Pediatric palliative care patients: a prospective multicenter cohort study
Publisher
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Pediatrics
Date
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2011
Subject
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adolescent; Child; Female; Hospitalization; Humans; infant; Male; United States; Young Adult; Palliative Care; Prevalence; Chronic disease; Eligibility Determination; Follow-Up Studies; Medical Audit; Prospective Studies; adolescent; Preschool; Palliative Care/organization & administration; infant; Newborn; PEDI Study; United States/epidemiology; Chronic Disease/epidemiology/therapy; Eligibility Determination/methods; Hospitalization/trends; Medical Audit/organization & administration
Creator
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Feudtner C; Kang T; Hexem KR; Friedrichsdorf SJ; Osenga K; Siden H; Friebert SE; Hays Ross M; Dussel V; Wolfe J
Description
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OBJECTIVE: To describe demographic and clinical characteristics and outcomes of patients who received hospital-based pediatric palliative care (PPC) consultations. DESIGN, SETTING, AND PATIENTS: Prospective observational cohort study of all patients served by 6 hospital-based PPC teams in the United States and Canada from January to March 2008. RESULTS: There were 515 new (35.7%) or established (64.3%) patients who received care from the 6 programs during the 3-month enrollment interval. Of these, 54.0% were male, and 69.5% were identified as white and 8.1% as Hispanic. Patient age ranged from less than one month (4.7%) to 19 years or older (15.5%). Of the patients, 60.4% lived with both parents, and 72.6% had siblings. The predominant primary clinical conditions were genetic/congenital (40.8%), neuromuscular (39.2%), cancer (19.8%), respiratory (12.8%), and gastrointestinal (10.7%). Most patients had chronic use of some form of medical technology, with gastrostomy tubes (48.5%) being the most common. At the time of consultation, 47.2% of the patients had cognitive impairment; 30.9% of the cohort experienced pain. Patients were receiving many medications (mean: 9.1). During the 12-month follow-up, 30.3% of the cohort died; the median time from consult to death was 107 days. Patients who died within 30 days of cohort entry were more likely to be infants and have cancer or cardiovascular conditions. CONCLUSIONS: PPC teams currently serve a diverse cohort of children and young adults with life-threatening conditions. In contrast to the reported experience of adult-oriented palliative care teams, most PPC patients are alive for more than a year after initiating PPC.
Identifier
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<a href="http://doi.org/10.1542/peds.2010-3225" target="_blank" rel="noreferrer">10.1542/peds.2010-3225</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Adolescent
Backlog
Child
Chronic Disease
Chronic Disease/epidemiology/therapy
Dussel V
Eligibility Determination
Eligibility Determination/methods
Female
Feudtner C
Follow-up Studies
Friebert SE
Friedrichsdorf SJ
Hays Ross M
Hexem KR
Hospitalization
Hospitalization/trends
Humans
Infant
Journal Article
Kang T
Male
Medical Audit
Medical Audit/organization & administration
Newborn
Osenga K
Palliative Care
Palliative Care/organization & Administration
PEDI Study
Pediatrics
Preschool
Prevalence
Prospective Studies
Siden H
United States
United States/epidemiology
Wolfe J
Young Adult
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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PedPalASCNet Member Publications
Subject
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A collection of relevant articles published by one or more of PedPalASCNet's members
Text
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URL Address
<a href="http://doi.org/10.1080/15524256.2011.593153" target="_blank" rel="noreferrer">http://doi.org/10.1080/15524256.2011.593153</a>
<a href="http://ovidsp.ovid.com/ovidweb.cgi?T=JS&CSC=Y&NEWS=N&PAGE=fulltext&D=medl&AN=21895435" target="_blank" rel="noreferrer">http://ovidsp.ovid.com/ovidweb.cgi?T=JS&CSC=Y&NEWS=N&PAGE=fulltext&D=medl&AN=21895435</a>
Dublin Core
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Title
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A qualitative study of advice from bereaved parents and siblings.
Publisher
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Journal Of Social Work In End-of-life & Palliative Care
Date
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2011
Subject
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IM; sibling bereavement
Creator
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Thompson AL; Miller KS; Barrera M; Davies B; Foster TL; Gilmer MJ; Hogan N; Vannatta K; Gerhardt CA
Description
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Despite a growing bereavement literature, relatively little is known about what families find helpful after a child's death and how best to assist them during the grieving process. In this qualitative study, the authors explored advice from 40 families (65 parents, 39 siblings) of children who died from cancer 6-19 months earlier. Content analysis emphasized the individual nature of grief and revealed advice that fit into three temporal categories: before the death, soon after, and long-term. Findings are discussed in the context of contemporary theory and provide insight into the development and timing of grief interventions.
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<a href="http://doi.org/10.1080/15524256.2011.593153" target="_blank" rel="noreferrer">10.1080/15524256.2011.593153</a>
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Type
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Journal Article
2011
Backlog
Barrera M
Davies B
Foster TL
Gerhardt CA
Gilmer MJ
Hogan N
IM
Journal Article
Journal of Social Work in End-of-Life & Palliative Care
Miller KS
sibling bereavement
Thompson AL
Vannatta K
-
Dublin Core
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Title
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PedPalASCNet Member Publications
Subject
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A collection of relevant articles published by one or more of PedPalASCNet's members
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
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Title
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Palliative Social Work in Canada
Publisher
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Oxford Textbook Of Palliative Social Work
Date
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2011
Subject
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PPC Book Chapter 2011 (Kim Widger)
Creator
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Cadell S; Bosma H
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
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Book/Book Section
2011
Book/Book Section
Bosma H
Cadell S
Oxford Textbook Of Palliative Social Work
PPC Book Chapter 2011 (Kim Widger)
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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PedPalASCNet Member Publications
Subject
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A collection of relevant articles published by one or more of PedPalASCNet's members
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Dublin Core
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Title
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Discovering strengths and growth in palliative care
Publisher
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Oxford Textbook Of Palliative Social Work
Date
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2011
Creator
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Cadell S; Shermak S; Johnston M
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
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Book/Book Section
2011
Book/Book Section
Cadell S
Johnston M
Oxford Textbook Of Palliative Social Work
Shermak S
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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PedPalASCNet Member Publications
Subject
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A collection of relevant articles published by one or more of PedPalASCNet's members
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
URL Address
<a href="https://books.google.ca/books?id=rAZiOwTY7uUC&pg=PA96&lpg=PA96&dq=Research+considerations+in+pediatric+palliative+care&source=bl&ots=_2LYGGhnZ4&sig=MgUIcBYf0kZ0cA6V0dlzn3L--6w&hl=en&sa=X&ved=0ahUKEwjdsK2d56bRAhUG8GMKHZqtB9AQ6AEIRTAH#v=onepage&q=Research%20considerations%20in%20pediatric%20palliative%20care&f=false" target="_blank" rel="noreferrer">https://books.google.ca/books?id=rAZiOwTY7uUC&pg=PA96&lpg=PA96&dq=Research+considerations+in+pediatric+palliative+care&source=bl&ots=_2LYGGhnZ4&sig=MgUIcBYf0kZ0cA6V0dlzn3L--6w&hl=en&sa=X&ved=0ahUKEwjdsK2d56bRAhUG8GMKHZqtB9AQ6AEIRTAH#v=onepage&q=Research%20considerations%20in%20pediatric%20palliative%20care&f=false</a>
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Title
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Research considerations in pediatric palliative care
Creator
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Davies B; Widger K; Steele R; Cadell S; Siden H; Straatman L
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New York: Elsevier
Date
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2011
Source
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In Wolff J, Sourkes B, & Hinds P (Eds.) Textbook of Interdisciplinary Pediatric Palliative Care, First Edition. New York: Elsevier, 96-103.
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2011
Cadell S
Davies B
Siden H
Steele R
Straatman L
Widger K
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
PedPalASCNet Member Publications
Subject
The topic of the resource
A collection of relevant articles published by one or more of PedPalASCNet's members
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
URL Address
<a href="https://doi.org/10.1186/1472-6963-11-343" target="_blank" rel="noreferrer">https://doi.org/10.1186/1472-6963-11-343</a>
Notes
<p>1472-6963<br />Siden, Harold<br />Urbanoski, Karen<br />PET-69769/Canadian Institutes of Health Research/Canada<br />Journal Article<br />Research Support, Non-U.S. Gov't<br />England<br />BMC Health Serv Res. 2011 Dec 16;11:343. doi: 10.1186/1472-6963-11-343.</p>
Dublin Core
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Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Title
A name given to the resource
Using Network Analysis To Map The Formal Clinical Reporting Process In Pediatric Palliative Care: A Pilot Study
Publisher
An entity responsible for making the resource available
Bmc Health Services Research
Subject
The topic of the resource
Community-institutional Relations; Continuity Of Patient Care; Hospice Care; Palliative Care; Pediatrics; British Columbia; Humans; Models Theoretical; Pilot Projects; Risk Management/ Organization & Administration
Creator
An entity primarily responsible for making the resource
Siden H; Urbanoski K
Description
An account of the resource
BACKGROUND: Continuity of care is a key component of care in complex and chronic conditions. Despite its importance, it is often absent in chronic-disease management. One challenge has been identifying tools to measure care continuity. In one context important to families, namely pediatric palliative care, we undertook a project to identify continuity and to pilot the use of network analysis as a tool. METHODS: Network analysis studies patterns of relationships or interactions between members, providing qualitative and quantitative description of network structure. RESULTS: In this report we applied network analysis to paper records of clinical consultations and reports for 6 patients with complex conditions. A high degree of discontinuity was identified, and care was fragmented amongst specialist and generalist providers. Information was shared selectively and often moved in only one direction. CONCLUSIONS: Families have anecdotally reported frustration with poor continuity of care. Network analysis can be a useful tool in describing the discontinuity of care experienced by families dealing with complex and chronic conditions. This tool could be expanded to other systems such as electronic health records and many other health care situations.
Identifier
An unambiguous reference to the resource within a given context
<a href="https://doi.org/10.1186/1472-6963-11-343" target="_blank" rel="noreferrer">10.1186/1472-6963-11-343</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2011
BMC Health Services Research
British Columbia
Community-institutional Relations
Continuity Of Patient Care
Hospice Care
Humans
Models Theoretical
Palliative Care
Pediatrics
Pilot Projects
Risk Management/ Organization & Administration
Siden H
Urbanoski K
Using Network Analysis To Map The Formal Clinical Reporting Process In Pediatric Palliative Care: A Pilot Study
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
PedPalASCNet Member Publications
Subject
The topic of the resource
A collection of relevant articles published by one or more of PedPalASCNet's members
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
URL Address
<a href="https://doi.org/10.1016/j.pedn.2010.01.007" target="_blank" rel="noreferrer">https://doi.org/10.1016/j.pedn.2010.01.007</a>
Notes
<p>1532-8449<br />Schneider, Monica<br />Steele, Rose<br />Cadell, Susan<br />Hemsworth, David<br />MOP-79526/Canadian Institutes of Health Research/Canada<br />Journal Article<br />Research Support, Non-U.S. Gov't<br />United States<br />J Pediatr Nurs. 2011 Jun;26(3):186-99. doi: 10.1016/j.pedn.2010.01.007. Epub 2010 Feb 25.</p>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Date
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2011
Title
A name given to the resource
Differences On Psychosocial Outcomes Between Male And Female Caregivers Of Children With Life-limiting Illnesses
Publisher
An entity responsible for making the resource available
Journal Of Pediatric Nursing
Subject
The topic of the resource
Parent-child Relations; Adaptation Psychological; Adult; Aged; Caregivers/ Psychology; Child; Chronic Disease; Cost Of Illness; Fathers/ Psychology; Female; Humans; Male; Middle Aged; Mothers/ Psychology; Palliative Care/ Psychology; Sex Factors; Stress Psychological/psychology; Young Adult
Creator
An entity primarily responsible for making the resource
Schneider M; Steele R; Cadell S; Hemsworth D
Description
An account of the resource
This secondary analysis of data examined the psychosocial outcomes of meaning in caregiving, self-esteem, optimism, burden, depression, spirituality, and posttraumatic growth in 273 parents caring for children with life-limiting illnesses to (a) determine if there were gender differences and (b) identify gender-specific correlations among these outcomes. Findings suggest that significant gender differences exist. Women reported higher average scores compared with men for meaning in caregiving, depression, burden, and posttraumatic growth and lower average scores for optimism. Correlations also revealed some significant differences. Health care professionals need to be aware of gender differences and tailor their interventions appropriately.
Identifier
An unambiguous reference to the resource within a given context
<a href="https://doi.org/10.1016/j.pedn.2010.01.007" target="_blank" rel="noreferrer">10.1016/j.pedn.2010.01.007</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2011
Adaptation Psychological
Adult
Aged
Cadell S
Caregivers/ Psychology
Child
Chronic Disease
Cost Of Illness
Differences On Psychosocial Outcomes Between Male And Female Caregivers Of Children With Life-limiting Illnesses
Fathers/ Psychology
Female
Hemsworth D
Humans
Journal of Pediatric Nursing
Male
Middle Aged
Mothers/ Psychology
Palliative Care/ Psychology
Parent-child Relations
Schneider M
Sex Factors
Steele R
Stress Psychological/psychology
Young Adult