Browse Items · Pediatric Palliative Care Library

Resource Utilization Among Individuals Dying Of Pediatric Life-threatening Diseases

BACKGROUND AND OBJECTIVES: Very little information exists on the number of resources utilized by individuals living with and dying of pediatric life-threatening diseases (LTDs). This study quantifies end of life (EOL) resource utilization among the…

Up against the System: A Case Study of Young Adult Perspectives Transitioning from Pediatric Palliative Care

Advances in pediatric care have not provided the interdisciplinary support services required by those young adults with pediatric life-threatening conditions (pedLTCs) who live beyond childhood but have limited expectations to live past early…

Tags: 2013, Backlog, Browne G, Cook KA, Jack S, Journal Article, Nursing Research And Practice, Siden H, Thabane L

Moving Family-centered Care Forward: Bereaved Fathers' Perspectives

This paper describes the key behaviors of "excellent" pediatric healthcare providers - a term used by fathers of children with complex, life-threatening illness to describe providers who consistently and effectively engage in family-centered care for…

Tags: 2013, Baird J, Bereaved Fathers, Davies B, Family-centered Care, Gudmundsdottir M, Journal of Hospice and Palliative Nursing, Moving Family-centered Care Forward: Bereaved Fathers' Perspectives, Pediatric Health Care Providers Behaviors

Successful use of indwelling tunneled catheters for the management of effusions in children with advanced cancer

Background Malignant pleural effusion (MPE) and ascites (MA) negatively impact quality of life of palliative patients. Treatment options are limited. This study's purpose is to examine the experience with indwelling tunneled catheters (ITCs) for…

Tags: 2013, ascites, Backlog, catheters, Connolly BL, den Hollander BS, Grant RM, indwelling, Journal Article, malignant, Parra D, Pediatric Blood & Cancer, Pediatric Oncology, pleural effusion, Rapoport A, Sung L, Temple MJ, Zwaan Cm

Parental perceptions of forgoing artificial nutrition and hydration during end-of-life care

BACKGROUND AND OBJECTIVE: Forgoing artificial nutrition and hydration (FANH) in children at the end of life (EOL) is a medically, legally, and ethically acceptable practice under speci fi c circumstances. However, most of the evidence on FANH…

Physician variability in treating pain and irritability of unknown origin in children with severe neurological impairment

BACKGROUND: Pain and irritability of unknown origin (PIUO) is a challenging problem for nonverbal children with severe neurological impairments. PIUO is not associated with an identifiable source of nociceptive-inflammatory or neuropathic pain.…

Tags: 2013, Article #6, Backlog, Carleton BC, Journal Article, Oberlander T, Pain Research & Management : The Journal Of The Canadian Pain Society = Journal De La Societe Canadienne Pour Le Traitement De La Douleur, Siden H

Physician Variability In Treating Pain And Irritability Of Unknown Origin In Children With Severe Neurological Impairment