May 2018 List
Title
May 2018 List
Collection Items
Harnessing the power of telemedicine in palliative care from childhood to adulthood: The why and how
Objectives *Explain the rationale for incorporating telemedicine into the care of palliative care patients and its associated benefits. *Describe common challenges, proven strategies, and best practice recommendations for successful and sustainable…
From the Child’s Word to Clinical Intervention: Novel, New, and Innovative Approaches to Symptoms in Pediatric Palliative Care
Despite vast improvements in disease-based treatments, many children live with life-threatening disorders that cause distressing symptoms. These symptoms can be difficult to comprehensively assess and manage. Yet, frequent and accurate symptom…
Status Complexicus? The Emergence of Pediatric Complex Care
Discourse about childhood chronic conditions has transitioned in the last decade from focusing primarily on broad groups of children with special health care needs to concentrating in large part on smaller groups of children with medical complexity…
Emotional nursing labour in the childcare at the end-of-life and their family: A sistematic review
We intend to present a systematization of scientiic evidence about the emotional labour of nurses in the process of childcare in the end-of-life and their family. It was performed a literature search in the databases CINAHL, Medline, Psychology and…
Providing pediatric palliative care in non-urban areas of illinois: Challenges identified and recommendations for process improvement
Objectives *Identify 3 barriers to the provision of care in rural areas for children with life-limiting illnesses and their families. *Describe 3 approaches to improving the provisions of care in rural areas for children with lifelimiting illnesses…
Ethical Framework for Risk Stratification and Mitigation Programs for Children With Medical Complexity
Those in hospitals and health care systems, when designing clinical programs for children with medical complexity, often talk about needing to develop and implement a system of risk stratification. In this article, we use the framework of an ethical…
Interventions in the operating room for children near end of life: A multidisciplinary approach
Introduction: Pediatric surgeons are often involved in the management of severely or terminally ill patients. However, articles addressing their specific roles in the context of palliative care are almost inexistent. We sought to characterize the…
Story time with pediatric palliative care: A community self-care strategy
Objectives * Identify a simple, effective way to facilitate selfcare among hospital team members. * Describe the impact story time has had on the attendees' daily practice and self-care strategies. Background. Story time was born out of a photograph…
Anticipating death in children and adults with childhood onset severe central nervous system impairment: A case series review
Objectives * Discuss problems due to severe central nervous system impairment that can remain intractable to treatment options. * Define tipping points that can prompt anticipatory discussions, including suggested recommendations that best meet…
Changes in Parental Hopes for Seriously Ill Children
BACKGROUND: Hopes of parents of children with serious illness play an important role in decision-making and coping. Little is known about how parent hopes change over time. We describe the changes in parent hopes across multiple domains and time…
Speech–language pathology in paediatric palliative care: A scoping review of role and practice
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Trends in cause and place of death for children in Portugal (a European country with no Paediatric palliative care) during 1987-2011: a population-based study
Background: Children and adolescents dying from complex chronic conditions require paediatric palliative care. One aim of palliative care is to enable a home death if desired and well supported. However, there is little data to inform care,…
Introduction to a novel social media-based meaning intervention for caregivers of children and adolescents receiving palliative care
Objectives * Establish the need for a caregiver intervention. * Introduce the intervention and its components. * Disseminating findings from the piloting of this intervention. Informal caregiving, or care provided by an unpaid individual to an adult…
What I really need right now is to hear from other parents with a child like mine
Objectives * Describe two benefits of a web-based educational tool for parents of children with serious illness and clinicians who care for them. * List three common themes explaining what is most important to parents of seriously ill children in…
Implementing early pediatric palliative care for patients in the pediatric intensive care unit
Objectives * Create a standardized criteria for pediatric palliative care consultation using a systemic approach. * Discuss the need of a formal Palliative consult to be discussed daily in interprofessional rounds. Background. The number of…
Drug Abuse and Diversion in Pediatric Palliative Care-What You Should Know, What You Can Do, and What You Can Learn from Our Multisite Experience
Background Prescription drug abuse is an epidemic in the US, leading to increased government oversight in opioid prescribing. The issue becomes more complicated when minor children are involved. One pediatric palliative care team found that of 62…
Emerging Methodologies in Pediatric Palliative Care Research: Six Case Studies
Given the broad focus of pediatric palliative care (PPC) on the physical, emotional, and spiritual needs of children with potentially life-limiting illnesses and their families, PPC research requires creative methodological approaches. This…
Introduction of triggers for palliative care consultation improve utilization and satisfaction within a level IV NICU
Objectives * Identify three key elements that influence successful implementation of triggers for palliative care consultation within a NICU setting. * Recall the four major trigger domains that qualify for pediatric palliative care consultation…
Prevalence of life-limiting conditions in children and young people in England: Time trends by area type
Palliative care services in England lack data on the number of children with 'life limiting conditions' (LLCs). Recent research determined that the prevalence of LLCs in children in England was double previous estimates. We build on this by analysing…
Models of Care Delivery for Children With Medical Complexity
Children with medical complexity (CMC) are a subset of children and youth with special health care needs with high resource use and health care costs. Novel care delivery models in which care coordination and other services to CMC are provided are a…
Incorporating bereaved parents as facilitators and educators in teaching principles of palliative and end-of-life care
Objectives * Identify innovative ways to incorporate highly trained bereaved parent volunteers into educational opportunities in palliative care for health care providers and staff. * Describe the process of implementation and content of palliative…